I want to welcome others contributing to this celebration of Steven’s life!
Steven Keating was an inspiring advocate for people having access to their own data: that this isn’t a selfish thing, but that our access and exploration of personal data have the opportunity to be a greater good. He took and shared videos of his brain surgery, made 3D prints of his tumor that he passed around. In a TEDx talk, he asked: Can Selfies Save You? His data held meaning in understanding his own disease, and helped others understand the power and value of doing this.
With the support of his family, we’re extending that core belief: selfies do not mean “selfish”! While Steven had envisaged a “greater good” as something that involved sharing the data itself to advance collective research, Bastian and I have come to see that sharing our process has huge value – what we do and how we do it – potentially much more than the data itself. We wrote about this opportunity recently in a rejoinder to Gary’s vision for Article 27: Collaborating on Individual Discovery
So we’re working closely with Gary and others in Article 27, and we have open communications, community calls & chat – all in the hope that what is done here contributes examples and lessons for supporting and expanding the empowering methods of self research.
This isn’t requiring any use of Open Humans beyond having an account & participating in the forum. It’s about what works for you, sharing what you’ve doing & learning so others know about it and might learn and use it too.
Many folks here are already savvy self-researchers! I hope you consider taking something you were already interested in doing, and making it part of the memorial. 
P.S. Editing to add a link to another moving video featuring Steven & others (Liz Salmi, Open Notes project). https://www.redhat.com/en/open-source-stories/open-patient