To give you some context: On July 19 last year, Steven Keating – an inspiring advocate for patient data access as well as a friend & collaborator of us – passed away. Curiosity was a driving force in Steven’s life. He recorded and shared videos of his brain surgery, explored his cancer’s genetic data, and printed 3D models of his tumor. In his memory and in celebration of his life, we would like to help more people be curious about themselves. In the spirit of Steven’s work we would like to make self-research a collective endeavor – with your help. Our goal is to share reports about what we learned this July, in honor of Steven.
To that end we’re inviting people to share their ideas about self-research projects – questions they have, and potential approaches – and provide support for each other while actually conducting our self-research. By doing our individual self-research as a group we hope to be able to provide support to each other to make our ideas more successful.
This is also a great opportunity to try self-research for the first time – or to pursue a project you already have – by doing it with a small group of people who have diverse skills, lots of experience, and a desire to support you.
We already have a great group of people that participate and are already actively helping each other, including many folks from the QS community, such as @Agaricus @Steven_Jonas @sprague @Beau_Gunderson @Sara @francesblo @Prodigalson2025 @jakobeglarsen (I tried to find all of you, but sorry if I missed anyone!). A big shout out to all of them for being such awesome contributors!
If you’d like to join our little group of people doing collective self-research, you can read more about it on the webpage we’ve created for it. This has details of how to join, our timeline, where to find help, when our next webinars will be etc. For the next webinars:
- We already had a first kick-off meeting last week, but it has been recorded and shared along with the notes for you to catch up
- Today (February 11) we will have an open community call at 10am Pacific / 1pm Eastern / 6pm GMT which will heavily feature the collaborative Memorial
- On Thursday (February 13) at 10am Pacific / 1pm Eastern / 6pm GMT we will have open office hours to help you get started with finding ideas and questions for your own self-research
We hope to see some of you join us in doing self-research together!