I'm part of a group organized by Mad Ball and Bastian Greshake Tzovaras and other collaborators at Open Humans to support what they call "DIY Experimentation." The goal is to learn about ourselves and also about what kind of support is needed to make these kinds of projects easier. My question has to do with understanding what affects my tremor.
I have a sense that the tremor becomes worse before meals and better after, but before I experiment with any intervention I want to see how I can measure it conveniently and reliably. I've tried a finger tapping app, but my speed stays pretty constant with the index finger on both hands (about 47-48 taps per 10 sec), even though there are times when the tremor is visible and times when it is not. The test simply isn't sensitive enough to measure what I'm interested in.
I'm also using the 1-Button Tracker to record when the tremor is very bothersome. This is reliable, but doesn't capture the more subtle rise and fall during the day, and I have a sense that these recorded measures are influenced a lot by what activity I'm attempting. (It's more bothersome, obviously, when I'm attempting to do something involving fine motor skills.) I'm concerned it will affect my work as a spinal surgeon. Just kidding. But it still bothers me and I'm attempting to learn more.
If you want to join this collective project and organize your own self-experiment, please do. You don't have to track what I'm tracking - there are lots of different projects and interests in the group. You can find us in a public group at the Open Humans Slack: openhumans.slack.com, #diy-experiments.